Jennifer Skuches, the mother of Grace, plays with her daughter while at the Columbia University Medical Center in New York, Aug. 26, 2015. The Skuches make at least three trips to the hospital each week for routine check ups, blood draws and transfusions and could continue this until Grace is well past 20 years old. (U.S. Coast Guard photo by Petty Officer 3rd Class Ali Flockerzi.)